Support, education, awareness and hope for those living with psychological non epileptic seizures.
We’re here to help you navigate your journey with PNES.
Support, education, awareness and hope for those living with psychological non epileptic seizures.
We’re here to help you navigate your journey with PNES.
Check our list of health professionals who are specialized in the treatment of PNES or who have expressed an interest in PNES.
The gold standard for diagnosing psychogenic nonepileptic seizures is video-EEG monittoring which is available in epilepsy programs.
Your generous donation to the Epilepsy Alliance of America will help support college and continuing education scholarships.
ABOUT US
Psychogenic non-epileptic seizures (PNES) present with a sudden change in behavior, perception, thinking, or sensation that closely resemble an epileptic seizure. However, they are not accompanied by electroencephalographic (EEG) changes that occur with an epileptic seizure and are instead due to psychological distress and/or physiological dysregulation. It can take an average of seven years to properly diagnose a patient with PNES which can delay treatment and recovery significantly. It is not uncommon that a misdiagnosis of epilepsy is carried by patients prior to receiving the accurate diagnosis.
This website is administered by a group of specialists in PNES from around the globe who work together to build public awareness and a reservoir of information for health professionals. The purpose of nonepilepticseizures.com is to create the most comprehensive consumer information, public and professional education website on PNES in the US and other English-speaking countries.
REFERRAL INFORMATION
Once you are diagnosed with psychogenic non-epileptic seizures, it can be a huge challenge to find a treating professional when you are not provided with a proper referral.
Here, you will find a list of health professionals who are specialized in the treatment of PNES or who have expressed an interest in PNES.
NON EPILEPTIC SEIZURES EDUCATION
Check our online program for clinicians who are already working with patients diagnosed with PNES and are seeking to learn how to work more effectively with them!
Below is a selection of books that provide valuable insights into the understanding, diagnosis, and treatment of psychogenic nonepileptic seizures (PNES). These resources are intended for health professionals, researchers, and anyone seeking to deepen their knowledge about PNES. We hope this list supports your work in providing informed, compassionate care for individuals living with this condition.
Your input matters. Please take a moment to answer this short survey. Your responses help us understand patient experiences and improve access to mental health support after a PNES diagnosis.
The gold standard for diagnosing psychogenic nonepileptic seizures (PNES) is video-EEG monitoring, a test that combines continuous EEG recording with simultaneous video of the patient. This allows specialists to capture and analyze both brain activity and physical behaviors during an event. While routine EEGs may not always detect abnormalities in patients with PNES, video-EEG monitoring performed in specialized epilepsy programs provides a comprehensive and reliable way to distinguish PNES from epileptic seizures. This technology is crucial in preventing misdiagnosis and ensuring that patients receive appropriate and timely treatment.
SUPPORT PNES
Lorna Myers PNES Scholarship Fund – Epilepsy Alliance America
Your generous dotnation to Epilepsy Alliance of America will help support college, trade school, and continuing education scholarships for persons diagnosed with psychogenic non-epileptic seizures (PNES).
Please follow this link and choose from the drop-down menu “designate my gift to provide PNES scholarships”
